Author Topic: I think Izzy had a Seizure ...  (Read 11320 times)

EllieAndBlu

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Re: I think Izzy had a Seizure ...
« Reply #15 on: August 22, 2006, 02:13:32 am »
Sending thought and prayers to you and Izzy!

Offline Miranda

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Re: I think Izzy had a Seizure ...
« Reply #16 on: August 22, 2006, 02:21:54 am »
My cousin used to do something like that. When she was really upset or hungry or basically anything, she'd hold her breath until she passed out and usually wet herself. Then she'd snap out of it and be just normal. The doctors just said she'd grow out of it, and she did.
If you think dogs can't count, try putting three dog biscuits in your pocket and then giving Fido only two of them.  ~Phil Pastoret

Offline Leah-n-boy-os

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Re: I think Izzy had a Seizure ...
« Reply #17 on: August 22, 2006, 04:46:24 am »
Ok, I got a chance to read your updates. Not to get too personal on a public board, but what kind of Health Insurance do you have? Can you get second opinions, see a specialist, or does everything have to go through a PPO?

Bloodwork is all fine and well, and can rule out a bunch of things, but a Pediatric Neurologist will need to be consulted if Epilepsy is suspected. They'll need to do an MRI as well as some other tests, most of which (thank goodness) are done while the little one is sleeping.

Not to argue with anyone here, but these do not sound like Petite Mals, these sound like "Absence Seizures". What happens is that the child's brain has a "misfire" (a lot like a bad distributor cap on a car) and the electric impulses in the brain get routed incorrectly. The child will seem to "zone out", there will not be any convulsions per se, sometimes the child will drool a little, or a "tic" will develop. Muscle rigidity will also occur in most cases. These seizures can last anywhere from mere seconds to upwards of 15 minutes. My son's longest was 12.5 minutes, all the while with me screaming in his face in an attempt to call him back to alertness. (One of his first...freake d me out!)

There are several different things that can increase the frequency of this occuring, sleep and diet being the main two. At Izzy's age, she needs a lot of sleep, and deprivation can make the seizures worse. Also diet can be a huge factor. She's at the age that you are probably introducing her to a more varied diet than she's had previously.

I would definately start leaning on your Pediatrician. Demand that he look further into the Seizure diagnosis. (after all, that's what you pay hiim for!) Also, in the meantime, you can perform your own sort of testing. Ensure that Izzy sleeps for at least the recommended times fir her age group. (Believe me, I remember what a fight it was to get my son to rest, I'm feeling your pain!) Also, try to observe and record what you're feeding Izzy. Document *everything*, this will help your Doctor(s) to accurately diagnose what's happening to your baby.

I'm sure you've already started to research, but here's a couple of places you might want to bookmark:

www.epilepsyfo undation.org
www.epilepsy.c om
http://kidshealth.org/teen/diseases_conditions/brain_nervous/epilepsy.html

I hope some of this will help.
« Last Edit: August 22, 2006, 04:48:03 am by Leah-n-boy-os »
Leah and the Boy-os
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Zeus (Heinz 57)
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Offline horsepoor21

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Re: I think Izzy had a Seizure ...
« Reply #18 on: August 22, 2006, 05:15:59 am »
Thankyou everybody for thinking of my Izabelle ! It means so much to me !

Leah-n-boy-os > I am having difficulty getting anyone to take me seriously . The doctor on the phone yesterday told me " Maybe she's just coming down with a cold or something " What the heck ? And I'm not allowed to go to another dr without a refferal so I'm just going to keep working on these guys until they give in . As far as diet and sleep , I'm a huge stickler on these things . I always have been , so Izabelle gets her 14 hours of sleep including nap . Her diet is very good but I will still keep a journal on everything I've fed her just in case . Thankyou so much for your help . I will look at those websites you mentioned when I get back from the store , thankyou again !!!!
-Amy
-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
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Kiahpyr

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Re: I think Izzy had a Seizure ...
« Reply #19 on: August 22, 2006, 05:47:06 am »
I'm so sorry you are going through this. I know how hard this can be. My exboyfriend had a 2 year old son that would have those kinds of seisures. The doctor told him that the son would out grow them. I'm not sure if that was the right answer or not. I don't keep in contact with him so I'm not sure if the son did or not. I would definately keep at it to get a second opinion or call your insurance company and let them know that you really want one and your doctor is being a pain.

Offline Leah-n-boy-os

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Re: I think Izzy had a Seizure ...
« Reply #20 on: August 22, 2006, 06:01:47 am »
Yes, Epilepsy in children can "go dormant" when they hit puberty. In some cases, it will come back in their later years, but I don't know the exact percentages on that.

The great news is that there are GREAT medications out there now to help control the disease. Jon is on a med called Tegretol. It does not have the "zombie" effect of Phenobarbital, and comes in chewable tablets for the little ones. Jon's been on it with fabulous results since he was 2. We used to crush up the tabs and slip them into applesauce until he was old enough to chew them himself.

Amy - I know what you're going through with your Doctors not seeming to listen. Keep fighting is all I can tell you. If you have a video camera....USE IT! Set it on a tripod and just tape her for hours. Sooner or later, you're going to catch it on tape.

Did they do an MRI when she fell? If not, I highly suggest that you start kicking up a huge fuss. If they're not willing to listen, start talking to your State Medical Board, or consult an attorney who will. Your baby fell down a flight of stairs, at the very least they should have done a *very* thourough examination, and an MRI to check the brain. I'm not normally an advocate for lawyers, but with this, I say do what you need to to protect your baby.
Leah and the Boy-os
Apollo (Akita/St. Bernard)
Zeus (Heinz 57)
Onyx (Newfoundland)
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Being owned by Big Paws just indicates how big your heart is.

located - Gig Harbor, WA

Offline MagicM3

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Re: I think Izzy had a Seizure ...
« Reply #21 on: August 22, 2006, 08:05:14 am »
Don't let your Doctors give you that very lame *oh she's juwt being an over protective mother*

I would say that is our job as mom's and if they think that a mother bear or tiger or wolf is protective watch out for mom's like us.

You keep on with the good fight until you get the answeres you need, and document everything including phone calls and times and what you were told and ask who you are speaking to take names.

H@*l tell them you are taping all your conversations
Whatever it takes.
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Offline horsepoor21

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Re: I think Izzy had a Seizure ...
« Reply #22 on: August 23, 2006, 05:12:39 pm »
Well , yesterday went well , nothing happened , but tonight she had two within an hour of eachother . I know now that the one incident when I thought maybe it was a "really good fit" is not true as tonight she was not upset about anything at all , the first happened when she was just walking up to me to hand me her sippy cup and the second when she was playing with her brother behind a chair . Of course , I've been carrying around my camera for two days but when they happened I was so worried about catching her and comforting her I never though to actually use it  :-\ My husband saw both of these ones though so I know I'm not just blowing things out of proportion now . So , soon as the dr's office opens in the morning I am calling and demanding they see her , I hope they don't take forever . I'm so scared to let her out of my sight now , even for a second  . I also am scared for her while she sleeps , what if she chokes or something ? So ,I've been sleeping with her all week but luckily nothings ever happened at night .So anyways , please pray that little Izabelle gets the care that she NEEDS from these doctors so we can find out what's causing this before something really bad happens ! Thankyou !
-Amy
-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline doglover

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Re: I think Izzy had a Seizure ...
« Reply #23 on: August 23, 2006, 06:41:22 pm »
Can you take her to the ER?

Offline horsepoor21

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Re: I think Izzy had a Seizure ...
« Reply #24 on: August 24, 2006, 08:47:12 am »
Well , just got back from Izabelle's appointment a little while ago , it was over 2 hours long . At first I got the " Oooh , but are you SURE it's not just a really good fit ??" but after I explained everything in detail they are worried and have scheduled an MRI tomorrow in Rapid city which is about a 1 & 1/2 hour drive from me . They have to do it there as she will need to be sedated and it will take about 3 hours all in all . Our Pastor's wife is going to watch my boys for me ( Can you believe I've never had them babysat before ? I felt so funny asking someone ! LOL ). I'm just so glad they're actually doing something , hopefully tomorrow I'll have real answers ! So anyways , thought I would update everyone ,thankyou for thinking of my girl !
-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline newflvr

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Re: I think Izzy had a Seizure ...
« Reply #25 on: August 24, 2006, 11:12:18 am »
I'm glad they paid attention to you.  Mom's know;  they just know!!!

And thanks for keeping us informed! We'll be thinking of you and Izzy!!! ;)

Icerotti

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Re: I think Izzy had a Seizure ...
« Reply #26 on: August 24, 2006, 11:22:14 am »
Sending good thoughts to Izzy and your family.

Offline macybean

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Re: I think Izzy had a Seizure ...
« Reply #27 on: August 24, 2006, 12:05:17 pm »
I hope everything goes well tomorrow. Take care.

Offline chaos270

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Re: I think Izzy had a Seizure ...
« Reply #28 on: August 24, 2006, 12:44:32 pm »
We'll keep fingers and paws crossed that it turns out okay.
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Offline brandon

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Re: I think Izzy had a Seizure ...
« Reply #29 on: August 24, 2006, 12:51:51 pm »
She didn't happen to do these at some point when you were getting onto her , distraught or mad did she.

The only reason I ask is, I did the same thing as a kid, and they ran all kinds of test on me, heart monitors, etc... It turns out I was just being a turd and holding my breath until I passed out.
“Women and cats will do as they please, and men and dogs should relax and get used to the idea.”